We went to the Down Syndrome Clinic today at Vanderbilt in Nashville Tn, where we seen a team of doctors. A medical doctor, a behaviorist doctor, a speech therapist, a physical therapist and an occupational therapist. The girls had ekgs ran, ultrasounds of their stomachs, and echocardiograms done. We talked to the medical doctor about sleep studies, ear surgeries, weight/height, development, future tests to be done, the speech therapist gave us some great ideas to improve and build on the girls speech, the behaviorist doctor gave us ideas and pictures to use with the girls to teach them house rules and acceptable behavior, the occupational therapist gave us ideas on improving Ellee's feeding techniques and ideas to do with both girls to improve on their fine motor and gross motor skills, the physical therapist told us that both girls have flat feet Johannah's being worse and so now we have on order orthopedics that go in her shoes.
It was a long day we got their at 11:30 our appointment wasn't actually until 12:30 but we got there early so we could check in and then go to the cafe and grab some lunch, but they took us right back. The girls did great right until around 4:30 and then they both started to get very overstimulated, tired, hungry and all around cranky. We were out of there by 5 with lots of info to process.
Word of advice for future Down Syndrome clinic visits is to take lots of snacks and never expect to be there anything less than 5 hours.
We should be finding out when the sleep study is going to be done, and we go back to the ear specialist for Ellee's ear and then they will refer us back to Vandy for surgery if she needs it.